Ahmed Shleibek is the Director of the Muscular Dystrophy Organization. He stated the government and its affiliated bodies clearly and explicitly neglected to ensure child Mira received gene injection treatment in the UAE. Mira was among the children targeted for this treatment. Shleibek made these remarks to Libya Al-Ahrar TV. The channel broadcasts from Turkey. Al-Marsad newspaper followed his statement.
Shleibek clarified that children, including Mira, have been on the waiting list for overseas treatment. Their waiting period exceeds two years. The government delayed providing financial allocations to the Medical Services Support and Development Agency until June. Since then, both the agency and the Libyan Embassy in the UAE continue to procrastinate.
Shleibek added that the issue concerns financial allocations. Procedures took about two months. He described them as bureaucratic, despite officials claiming they were necessary. The embassy then approved transferring the allocations to Al Jalila Hospital in the UAE. The funds were transferred over two weeks ago. However, the procedures remain pending. A death is recorded every two weeks.
Shleibek noted that routine financial transfer procedures require embassy involvement. He confirmed the Libyan state cannot directly transfer funds from the Central Bank to the hospital account.
He explained the agency informed them the problem originated with the embassy. No official letters or documents were provided. The embassy refuses to sign the transfer. Conversely, the embassy stated it requested reports from the agency. These reports concern five cases sent in March 2025. Shleibek emphasized that reviewing these reports is not within the embassy’s jurisdiction.
Responding to the embassy’s report request, Shleibek said, “This is Libya. I can say nothing more.” He explained that unqualified parties are interfering administratively. They are neglecting the crucial task of saving patients and critical cases.
He added that the agency submitted the reports after over a month and a half of delay. The embassy then granted its approval. The five cases sent to the UAE had allocated funds available since 2022. He pointed out that the number of deceased cases exceeds those sent for treatment.
Shleibek concluded by stating the government no longer provides any response. Communication is now with powerless employees.